Vosoritide的成功，再次向外界证明了罕见病赛道的巨大潜力：ACH看似是罕见病，但明确的致病机制、典型的临床表现，叠加数万级的患者基数和迫切、长期的治疗需求，使其成为了一个极具开发价值的 “不罕见” 罕见病市场。
Distribution and promotion strategies must extend beyond traditional channels to build the multi-platform presence that signals authority to AI models. This means systematically sharing your expertise across relevant communities, contributing to discussions on forums and social media, publishing on platforms like Medium or LinkedIn in addition to your own site, and building genuine relationships within your niche rather than just broadcasting content.
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